| I've done tons of research on
all types of lupus and on other
immunity disorders for a few years
now. the decline in my health
started when i had a lot of gastro
problems. they were severe for 4
months and bad for a year but b/c i
didn't have insurance i just
tried elimination diets thinking it
may have been a food allergy. much
later i found out that i had the
pylori infection that causes ulcers
and my doctor thought i was
bleeding internally because my iron
was very low. i was put on
antibiotics for the pylori ( which
i know is not considered serious )
and was given iron pills. my doctor
also thought a lot of it was in my
head (in fact i had to insist that
he give me the pylori test) turns
out the instincts about my body
were correct. he had prescribed me
anti-depressants before the blood
work came back positive because he
thought it might be depression but
the anti-d's caused my gastro
problems to be worse (yeah, i seem
to be really sensitive to meds
whether otc or prescription.
anyway, at the time, ( a little
over a year in a half ago ) this
same doctor who tested me for h
pylori (sp?) said in a follow up
visit that because of a long list
of varying symptoms (mostly related
to the intestines) that i typed out
on a sheet for him (and which i had
been experiencing for over a year
at the time) that i should see a
specialist and get my insides
examined to be on the safe side.
i had just lost my job and knew i
couldn't afford to go to a
specialist (g.i.) b/c i didn't
have insurance and wasn't
eligible for medicaid. (i had
already spent about $1,700 at my
family doctor's.)
since then, i moved to another
state and have free health care
because i am so low income and i go
to a local clinic. i try to get
blood work every few months or so.
last time i was checked for pylori,
it was gone (which was about 9-10
months ago). two months ago,
standard blood work was done and
everything came out fine. my
stomach/intestinal problems have
gotten better but are still
present. i feel achy a lot but the
worst symptoms of all is being very
fatigued. i get tired over the
smallest thing whether it is a
mental or physical task. this
isn't some temporary
situation. it's been bad for
years now. i just keep waiting to
get some big improvement so
i'm back to my old self but
haven't had such an
improvement. i've told my
doctor this several times but he
acts like i'm a hypochondriac
and never gives me referrals to a
specialist. all he does is
prescribe me more pain medication
each time...that's not going
to solve my problem! (not yelling,
just putting emphasis on the not).
he doesn't prescribe narcotics
but i know pain relievers can be
habit forming and even the gentler
ones are not good for you, have
side effects and get to where they
are not as effective once you start
taking them for a while.
i almost feel like i need to fake
some big attack for someone to take
me seriously. i cannot work full
time and the smallest thing that
doesn't go right can really
stress me out because my body and
mind already feels naturally
stressed all the time. i feel like
no one understands and the worst
part is, i'm right when it is
concerning those that are closest
to me because my parents seem to
not have a clue about what i'm
going through and can't seem
to understand or accept the fact
that i cannot work full time.
i'm sure they are stressed
about finances because they are
struggling in that area but i
can't handle extra stress
right now or any stress for that
matter. after all, it doesn't
cost anything to be a little
sympathetic and that free gift
would mean a lot to me.
i am not depressed, i mean, maybe i
am but it's all situational
and didn't happen until i
started feeling bad all the time,
physically. i used to have a good
job, a good salary and a nice
apartment but left my job because
of these health problems. i was
just way too stressed. i'm
only unhappy because of the way i
physically feel but like a downward
spiral, feeling bad physically has
stressed me mentally and that has
caused emotional problems in my
life so it is an endless cycle of
physical, mental and spiritual
stress.
i try to eat healthy but have no
money and am not eligible for food
stamps because i live with my
parents and they make too much
money, (yeah, the government
doesn't take into
consideration all the expenses my
parents have like food, gas, car,
insurance, health insurance for the
two of them, doctor visits, rent,
bills, and the 9 medications my dad
is on). they can barely afford to
buy basic things for themselves,
let alone me. so pretty much
i'm stuck with whatever they
buy and only ask for frozen mixed
vegetables because they aren't
very expensive. i don't drink
alcohol or soda and have very
little sweets/junk food. i'm
about 25 pounds overweight at most
which isn't much considering i
have the fat gene. in the last
couple of years i've lost
about 10 pounds and have gained a
little bit of muscle because i try
to stay somewhat active and walk a
fe
(sorry ran out of room, continued
at last word i left off with)
...,few times a week. the only time
i've been able to be really
skinny is when i literally did 4
hrs of hard core exercise a day
when i used to be on a
traveling/competitive dance team in
high school. (all of the people in
my family are over 300 pounds and
are considered morbidly obese
except for me and my both of my
parents are the most overweight
child in their family). i do my
best to make the most out of every
situation, to go out and try to
have fun doing active things etc...
but nothing can hide the fact that
my whole being especially my
physical body is so much different
than it used to be. i am only 26
years old and am a female. i feel
old because of my fatigue and
achiness. i've also had a lot
of situational things that have not
gone well in the past couple of
years but it seemed that things
started not going well after i
started feeling really bad, i mean,
when you start to get sick what do
you typically do?
usually you just tough it out and
still do your job to the best of
your ability and try to still be
fun with your friends and you try
to be as normal as possible but
what happens when the days turn to
weeks, the weeks to months and the
months to years. eventually,
forcing yourself to function
normally socially, mentally and
physically is going to take a big
toll on you when you are sick all
the time and constantly feel run
down.
from all the research i've
done on so many things right here
on yahoo answers from previous
questions and answers along with
research i've done on a lot of
other websites, i know that with
lupus your ana count can be fine in
one test but can later be off so it
is very difficult to get diagnosed
with lupus. i don't know what
to do...my life has been put on
hold for soooo long because of the
lack of proper medical care.
perhaps i should go to an emergency
room? i can't switch doctors
and he doesn't seem to take me
seriously.
i'm so tired of waiting for an
answer and having no results. my
bad health is not shaking off
through time. moving back in with
my parents, and with not being able
to work full time among other
things (most of the time i
haven't even worked part time
consistently), it makes me realize
that something needs to change. i
have been searching and praying for
a change for so long now. if i was
given a diagnosis, at least it
would give me some peace of mind. i
feel people do not understand how
much i struggle just day to day to
do easy, normal and even (what
should be) un-stressful activities.
is there any help out there?
i apologize for such detailed
paragraphs but i've wanted to
include all of these details for
months now and have put it off. i
put so many details to avoid
unnecessary answers and/or
questions. thank you so much for
your patience to all of you that
read this whole thing. god bless
you!
category
I will pray that God makes the resources available for you to find the answers to your doubts and worries. I hope you open your heart to him and receive his forgiveness and salvation. With his love and peace in your heart your worries will subside. He will guide you and give you answers. He will provide a path. Why not give him a try. He works when the world fails you. He is there when the world abandons you. He is your friend when no friend can be found. He listens and cares and wants to help you. Jesus grant him this. Amen.
† Equitable Prayer Warrior † |
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